AJE understands that the diagnosis of a serious health condition requires parents to venture into unfamiliar and often challenging territory, such as navigating the healthcare system or making important medical decisions. Parents and caregivers will also face a new challenge: communicating with your child about their condition, treatment and prognosis. Indeed, many parents find that this is one of the most daunting aspects of the caregiver journey.

Know that you are not alone in this concern and that there is support available to you. https://courageousparentsnetwork.org/guides/guide-to-speaking-with-your-child-about-prognosis.

AJE families might want to explore the other resources offered by the Courageous Parents Network, a nonprofit organization, dedicated to orienting, equipping and empowering those caring for children with a serious medical condition. We celebrate This Shared Journey: parents sharing their perspectives to support others and build community; clinicians sharing their expertise and commitment while learning from the insight and experience of families. Through these collaborations, we aspire to build confidence that all are doing the very best they can for the child and family.